Advocacy
Advocacy for SIDS-related issues
Check the following websites for lists of your local and national legislators.
Massachusetts Legislature
Letters to members of the House and Senate in Massachusetts and in Washington, DC, can have significant impact on the decisions made by legislators to fund important programs affecting SIDS.
Paige Victoria Perry Act: An Act Relative To Sudden, Unexplained Child Deaths (Article by Representative Perry)
Paige Victoria Perry Act (signed legislation)
SIDS News from the Presidential Campaign
Your help is even more critical! As the SIDS rate declines, there is concern that SIDS may cease to be a research priority. This is a critical time to make your voice heard. It is important that NICHD continue to support research aimed at uncovering what causes SIDS, who is at risk for this disorder, and identify ways to lower the risk. The importance of understanding SIDS is only underlined by its recent place in the headlines. The more we learn about SIDS, the more easily we will be able to distinguish SIDS from other infant deaths, and perhaps even one day be able to predict more accurately which babies are at higher risk and hopefully prevent it. The need to respond is immediate. Your support for these research efforts has made the difference in the past and can do so again in the future! |
