The Pediatric Hematology Program at BMC practices state-of-the-art medicine for children with blood diseases and offers a wide range of support services for patients and their families. We offer the following special patient-centered services and support.
The Pediatric Hematology Program at BMC offers a clinical and support services for patients and families coping with blood disorders, including:
The Pediatric STAR Unit provides a full range of tests, diagnostic procedures and treatments. Pain management is a priority, and the multidisciplinary program integrates state-of-the-art techniques to help ensure a child’s medical experience at BMC is as pain-free as possible.
Young women between the ages of 10 and 21 with blood and clotting disorders can find reassurance and solutions at through the BMC Adolescent Center’s innovative Menstrual Disorders Clinic. The only one of its kind in Massachusetts, the clinic offers the combined expertise of adolescent medicine specialists and pediatric hematologists to diagnose and treat a variety of menstrual disorders.
Teens with sickle cell disease between the ages of 18 and 22 can participate in the Pediatric Hematology & Oncology Program’s Transition Clinic. The only one in Boston, the multidisciplinary clinic offers assistance from a pediatric hematologist, an adult hematologist, social workers, nurses and other service providers to prepare older teens and young adults to become patients who can effectively advocate for and manage their health and health care services.
When young adults with sickle cell disease transfer their medical and nonmedical care to adult services, they may find it difficult to understand all that is expected of them. The Sickle Cell Transition Guidebook provides information and resources to help young adults make a successful transition into the adult care setting. It can also help prepare them for a new role as an independent adult by exploring available medical, clinical, nutritional and social services to help them toward a longer, healthier and more successful life.
- Coordination with the child’s family and those who surround the child in the community, such as:
- Patient and family education
- Genetic counseling
- Help in obtaining transportation, medications and supplies
- Events for patients and families
- Quarterly newsletter for families of children with genetic abnormalities of the blood
- Parent to parent services
- 24-hour hotline for nonemergency medical help at 617.414.4841
- School and daycare outreach
- Written and audiovisual materials
- Interpreter services
- Coordination with other caregivers, including:
- Case management
- Telephone consultation with referring physicians
- Emergency department, inpatient and outpatient consult service
- Integrated services for hematology patients with pulmonary issues
- Liaison with child behavioral health
- Education outreach to medical and nursing staff of BMC and neighborhood health centers
- New England Pediatric Sickle Cell Consortium
- American Red Cross
- Hole in the Wall Gang Camp
- Camp Sunshine
- Next Step
- Boston Public Schools
- Sickle Cell Disease Association of America
- Greater Boston Sickle Cell Disease Association
- SPARK - Supporting Parents and Resilient Kids
- We create and distribute written information.
- We have established a speaker’s bureau available to church and civic groups wanting additional information.