Tenga en cuenta: El Programa de Autismo del Boston Medical Center es un programa de apoyo y recursos para la familia. Si está buscando una evaluación para el autismo u otra información sobre la atención clínica, incluida la programación de una cita con uno de nuestros médicos, tiempos de espera o referencias, comuníquese con Pediatría del desarrollo y del comportamiento al 617.414.4841.
Atención y apoyo directo al paciente
El Programa de Autismo es una extensión de la atención para pacientes y familias atendidos en Pediatría del Desarrollo y del Comportamiento en Boston Medical Center. Nuestro equipo está comprometido a ayudar y capacitar al paciente y a sus familias para que alcancen sus objetivos a través de:
- Apoyo de recursos para el autismo
- Navegación familiar
- Apoyo para la planificación de la transición a la edad adulta
Entrenamientos
El Programa de Autismo del Boston Medical Center ofrece rutinariamente capacitaciones sobre temas tanto para padres como para audiencias profesionales. Las capacitaciones de recursos pueden incluir:
- Autismo 101
- Capacitaciones de recursos
- Transición a la planificación de la edad adulta
- Navegando por los TEA: un modelo innovador de apoyo para padres culturalmente diverso
- Seguridad, sexualidad y autismo
Vea nuestras capacitaciones para obtener una descripción más completa de estos temas. Para disponibilidad, precios y discusión sobre las necesidades de su grupo, contáctenos en autismprogram@bmc.org .
Iniciativas comunitarias
Red de Liderazgo para Padres en Autismo (PLAN)
- Un grupo diverso y multilingüe de padres líderes capacitados que ofrecen apoyo de pares a los cuidadores que tienen niños o adolescentes de cualquier edad con un diagnóstico de autismo.
- Reunión mensual para padres líderes con oportunidades de capacitación.
- Gratis y abierto a todos los miembros de la comunidad.
Adolescentes comprometidos como mentores (EQUIPO)
- Un modelo de tutoría único que une a los adolescentes con y sin autismo para ser co-mentores de un niño más pequeño en el espectro del autismo.
- Un programa de año escolar de hangouts mensuales supervisados.
- Gratis y abierto a todos los miembros de la comunidad.
- Los eventos mensuales incluyen una combinación de actividades sociales, recreativas y de servicio comunitario, con 2 capacitaciones anuales para mentores.
Autism Resource Support
Autism Resource Specialists (ARS) are available upon diagnosis and beyond to offer support, information, and assistance to families.
Navigating School Services and Therapies:
- Reviewing the child’s school placement, plan, and services
- Advocating for necessary services when appropriate
- Helping and empowering caregivers through the IEP process
- Supporting referrals to therapies such as ABA, speech, and OT
Linking Families to Community Based Support Agencies such as:
- Department of Developmental Services (DDS)
- Social Security (SSI)
- Local Autism Support Center
- Recreation programs and social skills groups
Providing Individualized Support around Specific Behaviors by Phone or In Clinic:
- Managing challenging behaviors
- Increasing independent living skills
- Developing alternative communication strategies
- Using visual schedules and routines
- Creating social stories
Hospital-wide Support
The Autism Program is available to provide support throughout the hospital to patients with autism, their families, and their clinical teams, to assure that medical appointments and procedures go most smoothly. This support is specifically helpful for patients who are fearful or anxious of the clinical environment or procedures, may have communication limitations, sensory sensitives, or require more behavioral support. Our hospital-wide autism resource specialists will work with patients and families to identify any pre-visit planning and resources that may be helpful, as well as provide day of support if needed. Autism program staff can also act a liaison between clinicians and families to assure questions are answered and the unique communication, behavior and sensory needs of the patient are shared. We have supported many different types of visits across a range of locations and procedures including: blood draws, eye exams, dental visits, vaccine administration, EEG/MRI, pulmonary treatments, and during emergency room and inpatient stays. Consultations can be requested by clinicians/staff of Boston Medical Center OR families in advance of a scheduled appointment or admissions. Please contact us at autismprogram@bmc.org or 617-414-3842 for more information about our hospital-wide consultations, or to inquire about getting support.
Behavior Clinic
The Behavior Clinic provides short-term (4-6 visits) behavior consultations to patients and their families. Patients referred to the clinic typically engage in significantly challenging or potentially dangerous behaviors at home or in the community.
Transition to Adulthood
The Autism Program’s Transition-to-Adulthood work provides education, assistance, and support to teenage patients (and their families) who are transitioning to adulthood:
Individualized Support and Consultation:
- Topics covered: school services, independence and life skills, guardianship, adult service agencies, government benefits, employment, goal setting, and vision planning
Resource Development and Education:
- Developing and maintaining transition resource library available to patients and the public
- Empowering families to go through the transition process with knowledge and resources
Collaborative Approach:
- Working with both youth and their families to set goals
- Collaborate with community partners, schools, service agencies